Today marks two weeks since the day John first entered the hospital for his soft palate surgery on Tuesday 4/22. For a quick recap, after devastating setbacks in recovery, that Friday 4/25, Jason and Erin were told to prepare themselves that John may need to be in the hospital for up to a year. Exactly one week ago, on Tuesday 4/29, the neurologist mentioned that John might be out of the hospital in two months and moved to in-home care.
Fast forward to a follow up of what has been going on today since John had a feeding tube inserted yesterday. Today's assessment of the feeding tube went well so the big line in his leg was removed. John also took a walk around the entire PICU with the aid of his Physical Therapist. Yesterday there were talks about moving him out of the PICU to the regular pediatric floor, but that has been put on hold because that floor is full. Once there is space, he will be moved to the pediatric unit.
So the best perk about being the Rowland's blogger is that I get to be the bearer of good news and the good news just keeps on coming. Today there were talks of home again and with a new timeline. Two weeks. Two WEEKS. That is actually a timeline that is within grasp now, a timeline that allows the Rowlands to be able to start thinking about how to get ready for home life again. Two weeks is not set in stone, but they are switching gears to prepare for that now very real possibility. The doctors really want John to be swallowing more before being released to in-home care. He is receiving 45mL of Pediasure an hour through his feeding tube and the hope is that his desire to swallow will come back now that his stomach is receiving the nutrition.
Prayer Requests:
- John's stomach nutrition to trigger swallowing
- the timeline of two weeks till home to hold true
- preparation for home life for the entire family and what long-term, in-home care will look like
- continued forward steps in John's recovery and continued good news
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